Hi Lisa - I've just replied on your other thread - good luck when you see your rheumy nurse. Take a list of questions, as it's so easy to forget.
Have you been given a little blue book or something similar to keep a record of your appointments and meds? It's easiest if you get into the habit of keeping your own notes, because one of the biggest adjustments is having to keep track of all your appointments with all sorts of different health care professionals - so far I've seen - GP, rheumalogist, rheumy nurse, phlebotomist (bllods nurse), research nurse, occupational therapist, physiotherapist (plus another one at hydrotherapy), and podiatrist! Phew - and that's just with the NHS!! It can seem a bit overwhelming at first but it does form a nice pattern over time, and it's easier if I keep good record of when I was told this or that, and when certain meds were started, because it's easy to forget the details and they often ask the patient as their records are not joined up at all! It must be even more confusing if you ever change hospitals!
Best wishes - Sylvia
Be kinder than is necessary because everyone you meet is fighting some kind of battle